Suffering in Silence: A life nearly lost to Ebola
Abandoned by her husband and shunned by some in her community, 18-year-old Nadej is working to survive and educate about the deadly disease.
Nadej lives with her one-year-old daughter and seven-month-old son in a mud hut surrounded by farmlands in the Democratic Republic of Congo. Their home is about an hour from Beni, the epicentre of the country’s latest Ebola outbreak. In August 2018, Nadej was infected with Ebola.
“I had malaria symptoms, so I went to the hospital,” she says, avoiding eye contact. “At the clinic I shared a room with another woman whom I assumed also had malaria. I returned home after I received my medication.”
But that night I started feeling other symptoms – fever and pain in different parts of my body.
Nadej was cured from malaria, but she was infected with Ebola from her roommate at the hospital.
“I was not convinced that I had Ebola, or that such a disease even existed,” she says. “I didn’t have an appetite for days; I could have died from starvation. I felt very weak and I spent my day sleeping at home. People around me noticed. Medical teams were inspecting the populations around and when they arrived at my place and I knew I would be hospitalised, I ran away.”
This is DRC’s 10th Ebola outbreak since the disease first appeared in 1976 and has been deemed the most difficult one to manage. The outbreak area is torn by conflicts between armed groups and the country’s official army. There is also strong resistance from local communities around vaccinations, healthcare inspections, or even believing that Ebola is real.
“I went to the pharmacy to buy medicine the next day. When the pharmacist learned about my symptoms he realised I had Ebola and insisted to take me to the hospital, but I refused,” Nadej says.
I had seen many people in this outbreak go to the hospital and die there. That is what the hospital represented to me: death! I thought if I am going to die anyway, I want to die at home.
Nadej ran away again, this time to her father’s house in a nearby city. Her father, however, was convinced of Ebola’s existence and its high risk. He recognised his daughter’s symptoms and called the treatment centre immediately. Nadej says:
I was in a very critical condition so I don’t remember how the days passed, but I remember spending two weeks at the hospital.
She made it out alive and with a better understanding of Ebola, but her return home presented new problems. Her husband, a farmer and the family’s sole provider, abandoned Nadej and their children when he learned of her diagnosis. He’s since remarried.
As is normal practice for any Ebola patient, all her belongings and those of her two babies were incinerated to avoid the risk of contamination. Nadej says:
I returned home from the hospital to an empty house. We had no clothes, all our belongings were burned. How could we survive? I could only think that we could not live anymore.
Nadej now buys charcoal from the market and sells it outside her residence. It’s not a very populated area, and hardly anyone passes on the dirt path outside her home. “Since my infection, some people have changed their route, thinking that they might be infected by passing near me,” she says.
To some I’m approachable, to others I should be stigmatised and avoided completely.
Seven-month-old Mohindo still mainly relies on milk, but Nadej is not allowed to breastfeed him for at least one more year to avoid infecting the baby. With her thin resources, Nadej has to buy two boxes of milk each day for the infant, in addition to their other needs. She says:
I live thanks to people’s kindness. When people pass by and talk to me, I tell them that I had Ebola and that the disease is real. A few people feel sorry for me and help me with a dollar here and there.
“Each day passes like that and when it ends I wait for the next day in hopes that someone else will visit and help us.”
CARE is a member of an inter-agency volunteers’ commission that raises awareness about Ebola, helps reduce stigma, and supports the cured to be reaccepted within their communities, in addition to providing training and handwashing stations around Ebola-affected cities, and in schools. Some of the cured, like Nadej, also take it on themselves to raise awareness among their communities, even if it results in some backlash. Nadej says:
Whenever I can, I talk to my community about Ebola.
- The crisis in the DRC is one of the 10 most under-reported humanitarian crises of 2018 identified in the CARE report Suffering in Silence
- Read the press release: Climate change is causing disaster and suffering in places hidden from the public eye, says new report from CARE International
By Mahmoud Shabeeb, CARE’s Humanitarian Communications Manager